I was broken hearted yesterday when I woke up to find I had and urgent update email from CarePages. It was an update on Matthew Akin-sadly, he passed away. I only follow a handful of kids, and unfortunately, almost all of them are struggling or fighting for their life right now. Matthew Akin's brother, Andrew, had an immune disorder called HLH with a genetic mutation if I remember correctly. After 3 bone marrow transplants and a long time of fighting, he passed away. Justin and Kristin's other son Matthew had the same gene with the defect and he was actually in the hospital doing his bone marrow transplant when his brother passed away-how hard for their family! I can't even imagine. Now he has gone and I'm sure they are lost. Please visit their carepage www.carepages.com/carepages/babyandrewakin and leave them a message of support or just include them in your prayers.
Also, I'm going to post the link for Luke Jensen and his family. I have mentioned him before, he has AML, he's had 2 bone marrow transplants, but the cancer has returned. Please read their story. They are an amazing family also. www.caringbridge.org/visit/lukejensen
We are all doing well. I am constantly reminded to be grateful for where we are because things could always be worse.